Roll Away the Dew - Heads on the Spectrum

Posts: 5293
Joined: 05/26/07

Posted: June 29, 2010 - 10:00am

This topic comes from a discussion in the Help on the Way topic concerning various folks' experiences with autism. Here's a place to hang out, discuss, learn more, and generally look out for each other.


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Regional Resources

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Here are a couple of websites that were given to me by TEACCH...
http://www.grasp.org/
http://www.autisticadvocacy.org/

Another useful read.

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Another very useful book for understanding autism is "Thinking in Pictures" by Temple Grandin. Grandin is one of the leaders in building equipment for handling large animals. She also has autism. At last report she was a professor at Colorado State University, although I'm not sure if that's still accurate. She writes books on animals and autism. She says that her autism actually helps her understand animals and see things through their eyes. She has written several other books on autism but I can't recall all the titles right now, but anything by her on autism should be helpful. She is also a frequent speaker at seminars on autism.

I saw my son come out of his shell

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on Sunday night in Philly! He's always enjoyed the shows but something special happened at this one. He was striking up conversations with people (I think he's starting to realize that Deadheads are cool with his autism). I wish I had video of him singing "You know our love will not fade away" at the top of his lungs while clapping out the rhythm at the end of the 2nd set! After the show he was telling everyone "That was the hottest show I've ever seen!" It was an awesome experience for me. There's definitely something therapeutic about the music and the scene! Thanks to the band and all you Deadheads out there!

What a wonderful story

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tphokie! Can imagine how grate that felt to watch your child feel so much enjoyment and comfortable in his surroundings!
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By trying we can easily learn to endure adversity -- another man's I mean.
Mark Twain

very cool, tphokie!

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so glad your son loved the show and that Heads are being cool and welcoming with him.

So Cool

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I'm happy that your son started coming out of his shell at the show. I had a similar experience long ago, and here I am, still joined at the hip with the music and the scene. There is really something therapeutic being among people who are understanding of other's differences. My thanks to all the heads out there, especially the ones at the Philly show...deadheads are good people...I'm happy you got to share that experience with your son. I'm biding my time until I can get out there with my boy. With any luck, this time next year we will be able to afford leaving the house.

I think tphokie is right, the people on the spectrum are gonna start coming out of the woodwork eventually, because the fact remains, the deadlot and Dead shows are good places for autistic people for a good many reasons...so I expect that there are more of us out there.

I went to an autism forum today...they were teaching school teachers about autism, and part of their training is talking to some aspies and asking questions. I took some notes, but I don't wanna post them yet, I'll wait until next week's forum and post both at once. I'm just blown away by tphokie's story right now. Here's to the boys for making our scene possible, here's to the fans for making our scene possible, and here's to you MaryE for making our online scene possible...

Nostrovia

Here's a question if anyone can help

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My son Josh (the one with autism) was observed twice yesterday looking straight ahead but his eyes were moving rapidly as though tracking something moving very fast. His Mom observed this once and then I saw it later in the day. Both times he responded quickly when we called his name but was unable to duplicate the movement of his eyes when he tried to do it. He has had no history of seizures to this point but is 14 and seizures often start in kids with autism at this age. People I've discussed it with suggested seizures or possibly hallucinations. My boss said, "sounds like he's tripping" only half jokingly. I replied "Maybe he got into something in Philly last Sunday that hasn't worn off!" but I'm sure that is not the case! We will of course discuss this with his doctor on his next visit but I wondered if anyone else has had a similar situation and might give some insight. Thanks, Preston

I will ask my friend

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tphokie, later today when he comes online, whether he has any info to share with us about this eye wandering topic. I would also suspect, like your boss joked, that he may have been in a sort of dreaming while awake (daydreaming if you will) state-but then I am no expert so I will ask.
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By trying we can easily learn to endure adversity -- another man's I mean.
Mark Twain

tphokie

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he said that seizure disorder can be a part of autism, and you should really consult a doctor.
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By trying we can easily learn to endure adversity -- another man's I mean.
Mark Twain

Thanks Lilly

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I think we will definitely do that!

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